Nov 29

Today we went to UKE for the last time this year!

Lela had an EEG to check her brain waves and a blood analysis. Since she had problems with her thyroid because of the contrast medium which was used during the magnetic resosance imaging and still has epileptic action in two centres of the brain she still needs soft medication. We already know that the epileptic brain action is still present, but due to medication she has no cramps at all. However this action is not heavy, but is just a leftover of that cerebral haemorrhage back then.

According to doctors, this should be hopefully gone within the next six months … hopefully!

Besides all that, Lela develops absolutely brilliant! There are some issues with her eyes since she doesn’t really focus for a long time, but we will know more later or just have to be patient … like every other parents too! :)

Nov 19

Since Lela is out of the hospital we visit a physiotherapist each week due to the artificial coma and general development of her body and brain. On Tuesday, the 13th November approximately 30 minutes after Nurith left the house with Lela I received a call.
It was Nurith telling me that she fell down on the stairs to the physiotherapists place and that something sounded very wrong when she landed on her leg. Fortunately nothing happened to Lela, which was on Nurith’s arms during these moments - but the reflexes and quick reaction of a mother are unbeatable!

So I took a cab and arrived 20 minutes later at the physiotherapist’s place. Nurith had a big swollen foot and Lela was simply sleeping. Our physiotherapist took good care of Nurith and Lela and organized the phone number of emergency surgeon.

Then everything really went fast. A few minutes later Nurith was in treatment and had an x-ray analysis. When the doc came out the dialogue was quite funny: “damaged” … “damaged?” … “yes, damaged!” … “damaged … what?”. To get serious he explained to me, that Nurith’s fibula was broken. However the fracture wasn’t that bad, so she had to relax for a week and after that they would put on cast, so she would be able to walk again.

nurith_beinWe still had so much going on this week, plus I had a lot of work to do. The following day was Nurith’s birthday and on Thursday we had an appointment at the hospital in order to get a recheck for Lela. So I just called my parents and since they didn’t see little Lela being out of hospital, they quickly decided to visit us for a week until Nurith was able again to walk again.

Regarding the recheck for Lela on Thursday there isn’t much to tell. We went to the hospital, an ultrasound check and a visit at Lela’s neurosurgeon. Situation still unchanged, no head pressure, the treated galeni malformation looked good, so there was nothing to worry about. Good news!

Our parents including my sister Jasmin arrived on Thursday evening and the enjoyment was very big, since almost the whole family, except my other sister Tanja who had to work, was united again for a few days. It was - and still is - great to see the “grandparents” enjoying our daughter so much! :)

Nov 12

Our little daughter turned four months today and as you can see on the pics we have a lot of fun, enjoying life and slowly start to turn our heads into more enjoyable directions …

Lela is developing well! She is laughing and smiling all day, babbles a few syllables and is working hard to exemplary suck her thumb. In the meantime she weights around 6 kg and has a size of almost 60 cm and with 38,5 cm her head girth meets the standard. Couldn’t be better!

ZZZzzzzzzz ... In the garden I am the boss! Lela Baggins Two beautiful girls