some more tests

On the 8th of January we had a meeting with a specialist who cares about babies who went through serious situations during or after birth.
After an hour of tests with a very tired Lela the specialist mentioned that certain reflexes are still there. Since most of them just stay a short while with the baby, some of these reflexes should be already gone, especially since Lela turns six months tomorrow.
However the specialist wasn’t able to say it for sure and Lela’s tiredness made the tests even more difficult, but she might bear traces of motorical problems and could be blind. How extreme the motorical problems will be, isn’t really sure, but she might not be able to walk.

It was quite a shock to hear all this. Of course we knew about all this when we talked to the doctors while Lela was still in coma back then, but it wasn’t really nice to hear it again, since she developed so fine until now.

Only time will tell how she will develop, but we make sure to do everything for her which needs to be done. We already arranged an appointment with an eye specialist in around two weeks and the physiotherapy she has for around seven weeks now, already showed very great results.
The tension in her legs got so much better, she is able to raise her head while on the belly and she got her first little meal (carrot porridge), which she tolerated and swallowed very good.
The specialist asked us to start with it, since we should test if she might be able to swallow food which is different from mothers milk.

As you can see it works out quite fine :)

Of course we are worried but we kinda stopped to get mad and crazy about everything what the docs told, tell and will tell us. You will (luckily) never be able to tell something for sure, especially when it comes to the health of a baby.
There have been situation docs gave up on babies and wanted to turn off the machines … and today? The kid is in school and doing well.

Of course not all situations turn out like this, but basically no one never ever knows what’s coming next!

2 Responses

  1. Anna Egebäck Says:

    Hello I find your blog at Goggles “Vein of galen”. Our son is now two yers old and he was born whith Vein of galen. We have done 3 embolisations in Paris. He is growing okej and started to walk in nov last year and started to talk.

    I will come back to folow you Lela. All god luck to you and i hope she grow up o a healthy girl!!

  2. Anna Egebäck Says:

    I forgot to say that we are from Sweden.

Leave a Comment

Please note: Comment moderation is enabled and may delay your comment. There is no need to resubmit your comment.